Care Data - A topical issue..
- A database of patients’ identifiable personal and confidential medical information uploaded to the Health & Social Care Information Centre on a regular and continuous basis from NHS General Practices.
- Includes NHS number, DOB, postcode, gender, ethnicity, all medical information and family history.
- More detailed information can be found on NHS Choices and in this Leaflet.
- Data won’t be used by NHS staff, but for ‘secondary uses’ which means it will be sold or given to universities and commercial organisations in the private sector.
- The proposed aim is to aid research to improve patient care and understanding of medical conditions.
- The Data Upload was due to happen in March 2014 but has now been delayed to September 2014 due to the negative press.
- The scheme runs on an assumed consent basis.
- However, if you do not wish for your data to be used, you can do one of the following:
- Visit the Surgery and fill out a form from reception.
- Follow This Link to send us a fax with the necessary content.
Information about you and the care you receive is shared, in a secure system, by healthcare staff to support your treatment and care.
It is important that we, the NHS, can use this information to plan and improve services for all patients. We would like to link information from all the different places where you receive care, such as your GP, hospital and community service, to help us provide a full picture. This will allow us to compare the care you received in one area against the care you received in another, so we can see what has worked best.
Information such as your postcode and NHS number, but not your name, will be used to link your records in a secure system, so your identity is protected. Information which does not reveal your identity can then be used by others, such as researchers and those planning health services, to make sure we provide the best care possible for everyone.
You have a choice. If you are happy for your information to be used in this way you do not have to do anything. If you have any concerns or wish to prevent this from happening, please speak to practice staff or download a copy of the leaflet “How information about you helps us to provide better care”. below
We need to make sure that you know this is happening and the choices you have.
You can find out more on the NHS England Care Data website